Articles/1996/4
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International Union for Health Promotion and Education

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Prostate Disease Awareness

By Chih Chien Kenneth Goh, Kang Yao Lim, Michael Ng, Brenton Tay

Internet publication: 15 May, 1996
Work by Monash University Medical students, produced as part of the health promotion subject offered at year three.
NB: Appendices are not available on the online version.

Goh K, Lim K, Ng M, Tay B. Prostate Disease Awareness. Internet Journal of Health Promotion, 1996. URL: ijhp-articles/1996/4/index.htm

Abstract

Prostate Disease Awareness (PDA) was conceived to raise public awareness and arouse interest in prostate disease, provide knowledge on prostate disease, signs and symptoms, diagnosis and treatment options, encourage men with symptoms of prostate disease to talk to their doctor, family and friends, and highlight organisations which provide information and support on prostate disease. PDA involved the use of a preliminary survey and presentation of two seminars to be followed by a post-survey. The preliminary surveys indicated that the community had some idea on the function and location of the prostate, but lacked knowledge on prostate disease. This was addressed at the two seminars where participants acknowledged an improvement in their knowlege base. They also felt more encouraged to talk about the problem itself. It is concluded that PDA's goals were achieved despite its small magnitude.

Keywords:

Prostate, benign prostatic hyperplasia, prostate cancer, prostatitis.


Health issue

Prostate disease is becoming a major public health problem. Every year 2000 Australians die from prostate cancer alone [1], which affects 1 in 10 males [1]. This year alone 5000 new cases of prostate cancer will be diagnosed [1]. Prostate disease however is still at large a subject very much in taboo, and the public's response towards it can be considered negligible compared to that received by breast cancer.

There was and still is a clear need for more awareness and publicity on prostate disease. Through research, much has been learned about the prostate in the past few years. Yet there is clearly a lack of information dissemination to the wider community. Hence the evolvement of the Prostate Disease Awareness (PDA) project.

Priority population groups

1. Original target population

Prostate disease affects mostly men above 50 years of age, with 30% of men at age 50 [2] having some form of prostate enlargement. This increases to 50% at 60 years, and 80% by 80 years [3]. Hence, it seems appropriate to have men over 50 as PDA's priority group.

2. Inclusion of women in target audience

Men seem reluctant to talk about their problems, and even less inclined to go see their doctor about it. It was realised that women can often be very influential in the Australian family, as on many ocassions it is the woman who instigates the visit to the doctor. Therefore, an ammendment was made to involve women in PDA.

3. Stretching the target to the younger generation

Although prostate disease affects mostly men 50 and over, PDA should involve younger age groups as well. It is inevitable that the younger generation will grow old one day so why not learn and talk about the subject now. Thus, everyone in the community was invited to participate in PDA..

Goals and Targets

The ultimate goal of PDA was to raise public awareness on the little publicised prostate disease. Other objectives were:

  • To arouse some public interest in prostate disease

  • To provide knowledge on prostate disease, signs and symptoms, diagnosis and treatment options

  • To encourage men with symptoms of prostate 'trouble' to consult their general practitioners and talk to their family and friends

  • To enable people to make informed decisions on prostate diseases

  • To highlight organisations which provide information and support on prostate disease

Strategies and Methods

1. Research

To promote health, it was first essential to have an understanding of the health topic. Information on prostate disease was obtained through:

  • Libraries

  • Internet - USENET and World Wide Web (WWW)

  • Anti-Cancer Council of Victoria (ACCV)

  • Australian Kidney Foundation (AKF)

  • Monash University Institute of Reproduction and Development (MUIRD)

2. Locating the priority population

The search for the appropriate audience proved difficult, whether it be with various senior citizens' clubs, retirement villages and Rotary Club branches. Fortunately, the Returned & Services League (RSL) of Oakleigh expressed interest and from then on, they became the focal point for the seminar and the corridor to spread awareness. The RSL with its extensive network of members also provided a means to get PDA's message across efficiently.

3. Distributing preliminary surveys

Four hundred surveys were distributed, taking into account an expected return of approximately 20% (refer Appendix C).

4. Analysing preliminary surveys

Data obtained was analysed, specifically to assess baseline knowledge, attitudes and practices on prostate disease. Data obtained aided in the formulation of the content of the seminar and rectification of misconceptions.

5. Organising publicity

A press-release was organised to raise community awareness on prostate disease and to publicise PDA, especially the scheduled seminar. The article was published in the weekly edition of a community newspaper - The Oakleigh-Springvale Times (refer Appendix H) dated 20th September '95.

Promotional posters on the seminar were posted in:

  • RSL sub-branches

  • health community centres

  • Monash Medical Centre

  • areas in the vicinity of RSL-Oakleigh eg. Oakleigh Shopping Centre, pharmacies, senior citizens' club, libraries (refer Appendix G).

6. Preparing seminar material

Seminar material was personally produced, with some provided by the AKF. It was decided that the content should accommodate an audience unfamiliar with the prostate and its diseases. Visual information was important, and overheads were designed to accompany the talk (refer Appendix E).

7. Seminars

Two seminars were held, one at RSL-Mornington, the other at RSL-Oakleigh (refer Video - Appendix K). The seminar at RSL-Mornington was held at their request. The seminars were designed

  • To provide information on prostate disease

  • To dispel myths and misconceptions on prostate disease

  • To allay fears people have on prostate cancer

  • To encourage men to confide in their families and doctors if they suffer any symptoms of prostate disease

  • To highlight organisations which provide information and support on prostate disease.

8. Distributing post-surveys

Post-surveys were distributed at the end of the seminar (refer Appendices D1, D2). The post-surveys were different to the preliminary surveys. Some questions from the preliminary survey were removed, and other questions added to assess the audience's understanding and knowledge after the seminar as well as changes in attitudes and practices. The audience was also asked to rate the presentation, organisation and usefulness of the seminars.

9. Distributing information pamphlets and leaflets

Information pamphlets from the AKF and leaflets from US Too were distributed together with the post-surveys after the seminar as a means of further disemmination of information on prostate disease (refer Appendix F). A leaflet of our own provided information on where to go for more information.

10. Analysing post-surveys

Data from the post-surveys were analysed to measure knowledge gained out of the seminar and changes in attitude and practices in relation to prostate disease. Opinions from the audience were used as a means of evaluating the seminar.

For more detailed information of proceedings, refer to the Log Book (Appendix J).

Evaluation plan

Two surveys were employed in the course of PDA as a means of evaluation.

1. Preliminary survey

Four editions were printed (refer Appendix C). The 1st edition as compared to further editions did not ask about the participant's gender. The preliminary survey was designed to assess the community's knowledge on prostate disease which determined the type of seminar material to be used.

The questionairre consisted of questions regarding their

  • knowledge on prostate disease

  • attitude towards prostate disease

  • actual practices in real life

2. Post-survey

Two editions of the post-survey were used, the 1st at RSL-Mornington and the 2nd at RSL-Oakleigh (refer Appendices D1, D2), the difference being the section in regard to the seminar ratings.

Basically, the questions were categorically similar to the preliminary survey but were more probing. The audience was also asked to rate the seminar (refer Appendices D1-4, D2-4). These questions were modified after the 1st seminar upon recommendation by Ms Day of Victorian Continence Foundation, hence the two editions.

Results

Preliminary surveys

109 surveys were returned out of a total of over 400 distributed. Of this, 23 surveys were those of the 1st edition and classified as an unknown gender in the data analysis process. 59 were male and 18 female (refer Appendix A-1). 16 people (14.6%) answered that they (or their spouses) have been diagnosed with prostate disease (refer Appendix A-13).

1. Knowledge on prostate disease

* Note: Some questions had multiple answers.

  • Most participants knew the bare facts about the prostate. 88.9% knew it was related to the male reproductive system, and 96% knew it was located in the perineum.

  • The community has in general 'heard' about the three main prostate diseases, eg. 96% has heard of prostate cancer.

  • With regard to the risk factors in prostate disease, age was a popular choice - 66 of 109 chose this. About one-fifth of participants did not know about risk factors, and a similar number believed smoking, alcohol and genes to be risk factors.

  • 92% of participants believed prostate cancer can cause death, but only 46.6% of these people knew that death occured through metastasis, indicating 53.4% false positives.

  • 69% (75 of 109) believed they knew the symptoms of prostate disease, and of these, 80% correctly chose 'difficulty with urination' as one of the symptoms.

  • 88% thought prostate cancer could be medically treated.

  • Only 34% were aware of treatment complications, and under 40% of these were aware that both incontinence and impotence are possible complications. More than 45% were not aware or did not know of any possible complications.

  • The majority are not familiar with the detection tests. However, there is some familiarity with the Digital Rectal Examination (DRE) and blood test, the two most common test conducted by GPs.

6% had heard of bone scans 38% had heard of the blood test (PSA); 20% had heard of ultrasound 41% had heard of Digital Rectal Examination

2. Attitudes towards prostate disease

It was important to see what they would do if they had prostate trouble. 83 of 109 people chose to see their doctor. Furthermore, only 10 would talk to their wife and 2 to their mates, highlighting the public's unwillingness to talk about such topics.

Post-surveys

35 post-surveys were completed and of these, 24 were from RSL-Mornington and 11 from RSL-Oakleigh. 35% of the seminar audience were men, the remainder being women.

1. Knowledge

Generally, the respondents rated an improvement in knowledge after the seminar (refer Appendices B-20, B-21).

a. Knowledge on the prostate

  • As seen in the chart above, 44% of participants knew of the prostate's function. Approximately 30% however still had the misconception that it was essential for urinating.

  • 94% knew the location of the prostate.

b. Knowledge on prostate disease

  • Almost all participants were aware of the common symptoms of prostate disease with only 9% giving incorrect responses.

  • 74% knew what BPH was, and treatment options available.

  • 60% were aware of the risks in developing prostate cancer, and 76% knew how cancer caused death.

  • With reference to the chart above, most were aware of treatment options for prostate cancer, and the complications arising from it as in the chart below.

  • Furthermore 75% were aware that men are more likely to die from other diseases than from prostate cancer.

  • 67% knew that antibiotics could be used to treat prostatitis.

c. Knowledge on diagnosis of prostate disease
  • 94% knew about some form of diagnosis of prostate disease, the most popular choices being PSA and DRE.

  • In regard to the above chart, 63% learnt that biopsy is the only definitive method to detect prostate cancer.

  • 68% of participants realised that mass screening was not perfect and hence not recommended as a means of detection.

2. Attitudes towards prostate disease

After the seminar:

  • 83% would approach their doctors if they had any prostate problems.

  • More respondents also replied that they were more willing to talk to their wives and friends about the problem.

3. Seminar rating

  • Organisation and pre-sentation of seminar material were rated as excellent and good.

  • The seminar ans-wered the audience's questions regarding the health issue.

  • Information provided in the seminar was considered useful, and worth recommending to other people within the community (refer Appendices B-20, B-23).

Discussion

1. Preliminary surveys

Generally, the community had rudimentary knowledge on the prostate. Most had "heard" about the three main prostate diseases, but were unfamiliar about the features of prostate disease. In addition, most lacked knowledge on treatment, its complications and diagnosis.

Furthermore, not many were willing to talk to others, eg. wife or mates, if they had prostate problems. By distributing the preliminary surveys, the goal to increase awareness was in the process of being realised.

2. Publicity

Publicity was an integral component in attracting an audience. The press-release in a community newspaper and promotional posters were means to not only publicise PDA, but to arouse public interest and increase awareness on prostate disease. Unfortunately a delay in the distribution of The Oakleigh-Springvale Times meant that many would be unaware of the seminar.

Posters also can only be effective if they reach the appropriate audience in time. Not many RSL members actually go to their respective branches regularly. Most turn up for functions only once a fortnight, if not monthly.

Other forms of media, eg. RSL newsletters, radio etc., could also have been used for publicity purposes. Ample time should have been provided for publicity purposes, which in our case should have been as long as one month.

3. The Seminars

Both seminars turned out fairly well, although there seemed to be a lack of audience at RSL-Oakleigh. Some positive feedback were received after both seminars, eg. the presented material was fairly easy to understand. This was also reflected in the ratings of the seminars. Through both seminars, we managed to provide knowledge to some members of the community.

A request was made by The Bentleigh Bowling Club for a seminar to be held later on. This was however not to be as one could not be organised within the time constraints of PDA. A member of RSL-Bentleigh had even requested for a copy of our seminar script. We realised that even though our audience was small, public interest had been aroused.

Pamphlets and leaflets containing additional information were distributed after the seminar. Via this method, the audience were informed of the existence of organisations which provide information and support on prostate disease

4. Post-surveys

The preliminary surveys and post-surveys were not designed to assess improvements in knowledge prior to and after the seminar. Hence a direct correlation in improvement of knowledge could not be made. Nevertheless there seemed to be a general improvement in knowledge after the seminar, as reflected in the results of the post-surveys. Thus, men are better informed to go see their doctors when they have problems.

The post-surveys also indicated that the audience felt more willing to talk about problems concerning the prostate after the seminar, especially to their own family members. This may however be inaccurate due to the small and predominantly female audience. Nevertheless we believed that we had managed to encourage people to talk about the prostate as reflected in the results.

5. Post-project work

The informational poster "Prostate - the gland below the belt" was produced for the RSL's Veterans' Affairs Health Week, which is scheduled during the week 22nd-28th October '95. This was a means to continue our health promotion which is not an end in itself but an ongoing process.

6. Further recommendations

One of the main problems about holding any seminar is audience numbers. Audience numbers may have been boosted by incorporating a seminar with some other established function, eg. some sort of luncheon event etc., as had been the case with the seminar at RSL-Mornington.

Although the RSL provides an extensive network of members, it may be difficult to target the 50-65 age group as many RSL members are over 65. The 50-65 age group is furthermore a working class, and is not likely to be affiliated with RSL groups.

It would also probably be not unwise to say that the majority of the community still feels that the prostate is too taboo a subject to talk about. One suggestion for 'desensitising' this sensitive issue would be to begin education at a young age. Methods may include talking about sex education, where one can encourage kids to be comfortable in voicing out their health problems related to sex, and to abate stereotypical views that an acknowledgement of their health problems is not a sign of weakness and loss of masculinity.

It was stressed that PDA is not advocating mass screening since there is still much controversy over the benefits of screening and even treatment itself.

Conclusions

The turnout for the RSL-Oakleigh seminar was no doubt a disappointment. This however does not mean that PDA's goals were not achieved. A relatively simple strategy such as a press-release can do wonders in the case of raising public awareness. We believe that in spite of the small magnitude of PDA as a project, we have accomplished all our objectives.

There is an abundance of information on prostate disease but there is great difficulty in getting this information across to the public.

Ackowledgements

We would like to thank the following people/organisations for all their support and contributions to the Prostate Disease Awareness Project.

  • Dr Hsu-Hage [Health Promotion Unit - Department of Medicine]

  • Prof de Kretser [Director - MUIRD]

  • Dr Riscbridger [MUIRD]

  • Mr Arthur Larsen [RSL - Oakleigh]

  • Mr George Noble [RSL - Bentleigh]

  • Mr Keith Moore [Rotary Club]

  • Mrs Mary Parker [RSL - Mornington]

  • Mr Roy Knusden [AKF]

  • Ms Keren Day [Victorian Continence Foundation]

  • Monash University Institute of Reproduction and Development (MUIRD)

  • Returned & Services League (RSL) - Oakleigh

  • Health & Resources Group of RSL

  • Australian Kidney Foundation (AKF)

  • US Too Australia

  • The Springvale-Oakleigh Times

References

  1. Australasian Prostate Health Council (APHC) and Australian Kidney Foundation (AKF). The Enlarged Prostate - what you ought to know (brochure).

  2. AKF. Why every man over 50 should have a prostate check up (brochure).

  3. APHC. PROS Trends - Current Perspectives on the Prostate, Issue One - 1993, p.1, Oxford Clinical Communications.

Bibliography

  1. Monash University Institute of Reproduction and Development (MUIRD). Prostate Health - Fact Sheet. '94.

  2. Guess HA. Population studies in benign prostatic hyperplasia. PROSpectives - Contemporary Issues in Managing Prostatic Disease '92; 2(2): 1-6.

  3. Barry MJ. Involving Patients in Treatment Decisions for Benign Prostatic Hyperplasia. PROSpectives - Contemporary Issues in Managing Prostatic Disease '93; 3(3): 1-4.

  4. Holmes AB. Men's Health - Carcinoma of the prostate. Aust Family Physician Aug '93; 22(8): 1375-84.

  5. Maxwell MB. Cancer of the prostate. Seminars in Oncology Nursing Nov '93; 9(4): 237-51.

  6. Victorian Cancer Registry. Cancer of the prostate. Canstat Dec '84 No. 6.

  7. Anti-Cancer Council of Victoria (ACCV). Prostate Cancer - A guide for patients & their families (booklet). June '95.

  8. ACCV. Coping with Radiotherapy - A guide for people receiving intensive radiotherapy (booklet). May '95.

 


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